"The Sandcastle Trust aims to provide some fun and respite for families where a parent or child has a rare genetic condition.

There are more than 6,000 genetic conditions. Each one affects less than 0.1% of the population but together they are one of the greatest causes of disability and early death, affecting three million families in the UK. (source: National Human Genome Research Institute)

Many are life-limiting, all are life-changing.

The Sandcastle Trust supports people of all ages living with a diagnosis of a rare genetic condition, to build lasting positive family memories and strengthen their family relationships, through the granting of Sandcastle Memories."

https://sandcastletrust.org/