“Our purpose at the Cystic Fibrosis Holiday Fund is to provide children with Cystic Fibrosis and their families an opportunity to spend quality time together. Kids with Cystic Fibrosis never get a break from the arduous daily routine of hours of physiotherapy, 50+ pills and nebulisers twice daily which are essential to maintain health and even this doesn’t guarantee they won’t get sick. Frequent, unpredictable hospitalisations are the norm which makes holding down a job difficult for parents, leaving incomes stretched and holidays often impossible to afford. Life expectancy is currently in the thirties but far too many children are still dying in their teens and twenties. This creates challenges for the mental wellbeing of all family members. Our holidays and grants help families create happy memories while they can.”